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Table a): Brief description of the Central Cardiac Audit Database fields used in this work, along with their completeness.
CCAD data fieldDescription% records with valid non-empty entriesDiagnosisUp to 6 diagnosis fields, containing IPCC diagnostic codes.95.5%*Specific procedureA specific procedure is allocated to a record using a CCAD algorithm ADDIN EN.CITE CCAD201116061160611606112CCADThe Information CenterCentral Cardic Audit Database: Paediatric Analysis Home PageCongenital Heart Disease Website2011Jan 29th 20112011LondonThe Information Centrewww.ccad.org.uk13, which uses the entries from 6 procedural fields (individual codes) to assign one of 38 possible operative procedures to a record.68.2%+30 day status30 day life status post-procedure is tracked using the NHS patient number and Office of National Statistics records. Where tracked life status was not available, this is derived from discharge status. Life status is independent of re-operation within 30 days of an index procedure.100% of which 2.8% are unknown.*Diagnosis field 1 only.
+it is known that that many records cannot be assigned a specific procedure under the current system.
Figure a): Flow diagram depicting the method for allocating a record to a diagnosis group on the basis of diagnosis attributes assigned to diagnosis codes within that record.
(UVH Functionally univentricular heart, BVH biventricular heart, + aortic or systemic arterial obstruction, - no aortic or systemic arterial obstruction)
Table b): Illustrative examples of diagnosis categorisation scheme 2
(IPCC: International Paediatric and Congenital Cardiac)
IPCC Code 1IPCC Code 2IPCC Code 3Record-level diagnostic attributesCardiac diagnosis group (+ indicates presence of arch/systemic arterial obstruction)CongenitalAcquiredUVHAmbiguous / unknown ventriclesBVHArch / systemic arterial obstruction010109. Hypoplastic left heart syndrome092901. Aortic coarctationYesNoYesNoNoYesUVH +
(without acquired)060225. Mitral regurgitation: congenital100601. Infective endocarditis092901. Aortic coarctationYesYesNoNoYesYesBVH +
(with acquired)010102. Transposition of great arteries (concordant AV & discordant VA connections) & IVS070700. Left ventricular hypoplasiaYesNoNoYesNoNoAmbiguous / Unknown VH140217. Marfan syndrome101025. Dilated cardiomyopathyNoYesNoNoNoNoAcquired only030103. Total mirror imagery (situs inversus)161001. Tracheal stenosisYesNoNoYesNoNoCongenital, unknown number of ventricles140206. DiGeorge sequenceNoNoNoNoNoNoNon-cardiac or un-coded diagnosis
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